Wednesday, September 28, 2005
Freckle Mix-up
FYI - I posted in a previous blog about the radiation techs dotting a freckle and not the tattoo, well the doctor assured me I am fine and it had no effect on my radiation. I am now beginning to have skin rashes from the radiation. He prescribed 2 topical creams that should help with that. He called it "Radiation Dermatitus". One more affliction to dump on the pile. It just itches like crazy! I hope the creams work.
Chaos & Heartache & Hope
This morning was a bit of chaos. I have to get Sophia on the bus at 8:00, Susannah on the bus at 8:50 and in between I usually try to get myself ready and make the drive to my daily shot of radiation. Today was hectic, as I'm sure you all have mornings like that. I didn't have time to get myself ready, spilled a 44 oz cup of water that was sitting on the bathroom floor (don't ask me why it was there), 4 minutes later spilled my own glass and broke it all over the bathroom sink while drying Susannah's hair. I was mad at John for something, and he was mad at me for something, and it was just funny so I just laughed. It was one of those mornings, but it just means that I'm alive and blessed by a busy family, and a wonderful husband who goes to his office each morning and works for his family. - Yes, I love my husband!!
I was up last night and could not sleep. One of those nights when you think of everything, and then try to do positive affirmations to get to sleep. It's hard to sleep when all you think about is this terrible disease. I don't necessarily think of my own cancer, sometimes I do, but also other people whom I meet each day at radiation. It just takes its toll. Yesterday a lady came out of her treatment just crying. I was gowned up and waiting in the ladies lounge waiting for my name to be called. She came into the locker area and then went into the changing room. I could hear her crying in the dressing room. I was very touched. I could feel what she was feeling with her. I was afraid they would call my name and I would miss her when she came out. I felt she needed someone to talk to. She did come out and I asked her if she was okay - No. Did she come with someone - yes, my husband. She said she needed to see the doctor today, that she was in so much pain in radiation and she has to do it twice a day four hours apart. She said she just cries thinking about doing radiation again. She is also going through chemo at the same time. She has in-operable lung cancer and give her a 20% chance of being alive in ten years.
Another lady who I always saw during chemo was at the radiation suite on Friday. I struck up a conversation with her, how are you?, are you doing radiation also?, when are you done with chemo?. What a friendly person she is, bright smile, always wears a bandana, always alone. She said she will always do chemo, that it must become a part of her life. She was diagnosed with lung cancer in January. She moved here from Texas to live with her sister so she could go to Sloan Kettering. We had a nice conversation. She told me that it is hard to keep her spirits up, sometimes she gets depressed. I can certainly understand. When I left I got to my car and got my Joel Osteen cd's on Keeping Your Joy and brought them in and gave them to her. I don't know if she's a Christian, but she knew Joel Osteen and said "He's from Texas just like me." She said she would listen to them, and even the insurance person from the office she was there to see said she enjoys him, too. (FYI - Joes Osteen is a preacher from TX I like to listen to in my car on the way to radiation. I feel blessed and ready to go after I hear his message.) I need to order that CD again now. I just hope she is as blessed with the message as I was. Get it for yourself on his website at JoelOsteen.com. You won't be disappointed.
Anyway, since I don't have my CD's anymore, I took the advice of Jacque, Janette's sister (also in TX) and rocked out on my way to radiation. I even bought a Van Halen CD on my way home. Sometimes you just have to rock out! It made me think of a simpler time in my life, when who you were going to Homecoming with was your biggest concern, and that felt really good.
Cancer is not fair, it doesn't care how old you are, how much money you have, how many kids you have, what kind of support network you have, how healthy you seem to be, it is ugly and destructive and so many lives are affected by it. This weekend I am going to walk for the Support Connection. The Support Connection is located here in New York. I called them when I was diagnosed, at the suggestion of Janette Yetter. They helped me by talking to other survivors who had gone through the same diagnosis and treatment and even same doctors. The Support Conncection offers counseling, support and activities to women and families affected by breast and ovarian cancers. I don't know what I'm going to do, I just know I want to support the people who supported me.
I mention Janette Yetter so much on this blog. I need to get a picture to post. Any one have a picture of her we can post? Maybe I'll take pictures at the walk this weekend so you can meet her. She's been such a big part of this journey with me, even though we don't see each other all the time. At church a few weeks ago I saw her and just started crying, I don't even know why. This week at church she gave me a pair of socks with the pink ribbon on them. Thanks, Janette. This weekend we're both skipping church since the walk is on Sunday morning. But I'm sure we won't be far from the Lord - just a different location. If you want to support us in our walk, you can send a check to the Support Connection, (check out their address in comments on the previous post), or go to their web site which I beleive is www.Supportconnection.org. If you wish, you may mail a check to me made out to The Support Connection, and I will make sure they get it. My address is Amy Sayegh, 35 Oak Pond Lane, Mahopac, NY 10541.
I was up last night and could not sleep. One of those nights when you think of everything, and then try to do positive affirmations to get to sleep. It's hard to sleep when all you think about is this terrible disease. I don't necessarily think of my own cancer, sometimes I do, but also other people whom I meet each day at radiation. It just takes its toll. Yesterday a lady came out of her treatment just crying. I was gowned up and waiting in the ladies lounge waiting for my name to be called. She came into the locker area and then went into the changing room. I could hear her crying in the dressing room. I was very touched. I could feel what she was feeling with her. I was afraid they would call my name and I would miss her when she came out. I felt she needed someone to talk to. She did come out and I asked her if she was okay - No. Did she come with someone - yes, my husband. She said she needed to see the doctor today, that she was in so much pain in radiation and she has to do it twice a day four hours apart. She said she just cries thinking about doing radiation again. She is also going through chemo at the same time. She has in-operable lung cancer and give her a 20% chance of being alive in ten years.
Another lady who I always saw during chemo was at the radiation suite on Friday. I struck up a conversation with her, how are you?, are you doing radiation also?, when are you done with chemo?. What a friendly person she is, bright smile, always wears a bandana, always alone. She said she will always do chemo, that it must become a part of her life. She was diagnosed with lung cancer in January. She moved here from Texas to live with her sister so she could go to Sloan Kettering. We had a nice conversation. She told me that it is hard to keep her spirits up, sometimes she gets depressed. I can certainly understand. When I left I got to my car and got my Joel Osteen cd's on Keeping Your Joy and brought them in and gave them to her. I don't know if she's a Christian, but she knew Joel Osteen and said "He's from Texas just like me." She said she would listen to them, and even the insurance person from the office she was there to see said she enjoys him, too. (FYI - Joes Osteen is a preacher from TX I like to listen to in my car on the way to radiation. I feel blessed and ready to go after I hear his message.) I need to order that CD again now. I just hope she is as blessed with the message as I was. Get it for yourself on his website at JoelOsteen.com. You won't be disappointed.
Anyway, since I don't have my CD's anymore, I took the advice of Jacque, Janette's sister (also in TX) and rocked out on my way to radiation. I even bought a Van Halen CD on my way home. Sometimes you just have to rock out! It made me think of a simpler time in my life, when who you were going to Homecoming with was your biggest concern, and that felt really good.
Cancer is not fair, it doesn't care how old you are, how much money you have, how many kids you have, what kind of support network you have, how healthy you seem to be, it is ugly and destructive and so many lives are affected by it. This weekend I am going to walk for the Support Connection. The Support Connection is located here in New York. I called them when I was diagnosed, at the suggestion of Janette Yetter. They helped me by talking to other survivors who had gone through the same diagnosis and treatment and even same doctors. The Support Conncection offers counseling, support and activities to women and families affected by breast and ovarian cancers. I don't know what I'm going to do, I just know I want to support the people who supported me.
I mention Janette Yetter so much on this blog. I need to get a picture to post. Any one have a picture of her we can post? Maybe I'll take pictures at the walk this weekend so you can meet her. She's been such a big part of this journey with me, even though we don't see each other all the time. At church a few weeks ago I saw her and just started crying, I don't even know why. This week at church she gave me a pair of socks with the pink ribbon on them. Thanks, Janette. This weekend we're both skipping church since the walk is on Sunday morning. But I'm sure we won't be far from the Lord - just a different location. If you want to support us in our walk, you can send a check to the Support Connection, (check out their address in comments on the previous post), or go to their web site which I beleive is www.Supportconnection.org. If you wish, you may mail a check to me made out to The Support Connection, and I will make sure they get it. My address is Amy Sayegh, 35 Oak Pond Lane, Mahopac, NY 10541.
Monday, September 19, 2005
More on Radiation...
Wow! I haven't posted a comment for a while! Rest assured I'm doing fine. I am so busy with this radiation and 3 children in 3 different schools. On top of that, I'm tired all the time. My radiation should end October 21st. So just one more month of this torture. My skin is holding up just fine. So far, so good.
I did have one "Uh Oh" moment last Thursday. When they line you up and position you on the table before they treat you they dot the tattoos they gave me to make sure they see them when aligning me up with the machine. I usually leave with five black marker dots on my skin. Before I leave, I usually try to remove the dots so I don't go walking around with dots on me. Last week when I was taking off the marker after my treatment, I noticed that they "dotted" a freckle instead of the tattoo. I brought it up to the tech immediately, and she assured me I am fine, and they lined me up properly from the other tattoos. I don't feel assured, and will ask the doctor on my next visit. Obviously, I can't do anything about it now, but I just want to know. I don't think they will be dotting any more freckles.
About radiation: it doesn't hurt, it's just like getting an x-ray. After a while your skin starts to react and brown and then burn (just like being in the sun). I get actual x-rays once a week, and visit the doctor once a week. I get the treatment every day Monday thru Friday. The longest part of the treatment is getting positioned to make sure they radiate the same spot each day, radiating as little of the heart, lungs, or ribs as possible. The actual treatment is about 4 minutes. Everyone is so nice, and I'm in and out pretty quick.
At this point in my treatment, I'm just getting tired of everything. I can't wait to get back to normal, if that's possible. My feet still bother me from the chemo (Taxol). My left foot hurts and feels like it's asleep a lot - something I guess I'll have to bring up to the oncologist. I wonder if you ever really get back to normal or if that's just in the past now. I guess maybe a new "normal". I'm spacing out my doctor's appointments now. Nothing is "life-threatening" (thank the Lord), so I can plan my appointments so I don't have an appointment every day.
FYI, I got an e-mail from the American Cancer Society and they said they are busy getting people affected by Katrina help and treatments elsewhere. That was one of the things I was concerned about, and I get an e-mail about it. If you donate to the American Cancer Society, you can see where the money goes. Check out their web-site at cancer.org, they should have more on their hurricane efforts if you are interested.
Also, I am participating in the Support Connection walk here in NY on October 2. They are the ones who I called when I was diagnosed and I spoke to a few really nice people in the same position as I. It was nice to talk to someone. They gave me lots of info and made me feel like I'm not alone. They offer lots of services to women diagnosed with breast and ovarian cancer. Let me know if you want to sponser or donate. I'm participating because they helped me.
I did have one "Uh Oh" moment last Thursday. When they line you up and position you on the table before they treat you they dot the tattoos they gave me to make sure they see them when aligning me up with the machine. I usually leave with five black marker dots on my skin. Before I leave, I usually try to remove the dots so I don't go walking around with dots on me. Last week when I was taking off the marker after my treatment, I noticed that they "dotted" a freckle instead of the tattoo. I brought it up to the tech immediately, and she assured me I am fine, and they lined me up properly from the other tattoos. I don't feel assured, and will ask the doctor on my next visit. Obviously, I can't do anything about it now, but I just want to know. I don't think they will be dotting any more freckles.
About radiation: it doesn't hurt, it's just like getting an x-ray. After a while your skin starts to react and brown and then burn (just like being in the sun). I get actual x-rays once a week, and visit the doctor once a week. I get the treatment every day Monday thru Friday. The longest part of the treatment is getting positioned to make sure they radiate the same spot each day, radiating as little of the heart, lungs, or ribs as possible. The actual treatment is about 4 minutes. Everyone is so nice, and I'm in and out pretty quick.
At this point in my treatment, I'm just getting tired of everything. I can't wait to get back to normal, if that's possible. My feet still bother me from the chemo (Taxol). My left foot hurts and feels like it's asleep a lot - something I guess I'll have to bring up to the oncologist. I wonder if you ever really get back to normal or if that's just in the past now. I guess maybe a new "normal". I'm spacing out my doctor's appointments now. Nothing is "life-threatening" (thank the Lord), so I can plan my appointments so I don't have an appointment every day.
FYI, I got an e-mail from the American Cancer Society and they said they are busy getting people affected by Katrina help and treatments elsewhere. That was one of the things I was concerned about, and I get an e-mail about it. If you donate to the American Cancer Society, you can see where the money goes. Check out their web-site at cancer.org, they should have more on their hurricane efforts if you are interested.
Also, I am participating in the Support Connection walk here in NY on October 2. They are the ones who I called when I was diagnosed and I spoke to a few really nice people in the same position as I. It was nice to talk to someone. They gave me lots of info and made me feel like I'm not alone. They offer lots of services to women diagnosed with breast and ovarian cancer. Let me know if you want to sponser or donate. I'm participating because they helped me.
Saturday, September 10, 2005
Will Work For Gas Money!
My previous post stated that my commute to radiation was 15 miles each way. Correction - 25 miles each way. I am currently taking any donations to fill up my gas tank (just kidding). Last time I filled up it cost me $89.00.
I was just e-mailing a family member, who is also going through cancer treatments. He was saying how he wondered what people did who didn't have friends or family around. I have to agree. You all have no idea how much you help me. I know I say it over and over, but it's true. I wrote back that you really find out how wonderful people can be, but I wish I didn't have to go through this and still thought most people were rotten (ha ha-again, just kidding).
I haven't felt any side effects from the radiation yet except being tired. But I think I was pretty tired before, so nothing new.
I was just e-mailing a family member, who is also going through cancer treatments. He was saying how he wondered what people did who didn't have friends or family around. I have to agree. You all have no idea how much you help me. I know I say it over and over, but it's true. I wrote back that you really find out how wonderful people can be, but I wish I didn't have to go through this and still thought most people were rotten (ha ha-again, just kidding).
I haven't felt any side effects from the radiation yet except being tired. But I think I was pretty tired before, so nothing new.
Tuesday, September 06, 2005
Rat Race
I had my first round of radiation today. One down 32 to go! I figure I'll be done October 20th. Tomorrow will be the beginning of the rat race for me with Susannah and Sophia starting school on 2 different buses at two different times and then driving Alex to school. Alex doesn't start school until Thursday. I have Elizabeth Bauerlein babysitting in the AM for Alex so I can go get my treatment. Wednesdays will be longer since I see the doctor every Wednesday. The rat race begins - council meetings, back to school nights for two different schools, Susannah's birthday party, lia sophia (jewelry) meeting and shows, Sunday school, kids activities and sports - on top of driving 15 miles each way to radiation everyday! I'm already tired. I guess I'll have time to enjoy my Joel Osteen CD's in the car. One thing I won't forget is to "smell the roses" each day. Thank you, Lord, for all this activity! We just don't know what is in store for us each day. I just thank God that I can enjoy every day I have.
My hair is definately coming in now. My kids call me Fuzzy Wuzzy. We have fun saying that rhyme, "Fuzzy Wuzzy was a bear, Fuzzy Wuzzy had no hair, Fuzzy Wuzzy wasn't fuzzy was he." I guess you had to be there. Say a prayer for those affected by Katrina!
My hair is definately coming in now. My kids call me Fuzzy Wuzzy. We have fun saying that rhyme, "Fuzzy Wuzzy was a bear, Fuzzy Wuzzy had no hair, Fuzzy Wuzzy wasn't fuzzy was he." I guess you had to be there. Say a prayer for those affected by Katrina!
Friday, September 02, 2005
Vacation Pics
Are these girls right out of a postcard or what! 
I can't believe I have the guts to publish this picture. I do have hair, you just can't see it because it's baby hair!
I can't believe I have the guts to publish this picture. I do have hair, you just can't see it because it's baby hair!
Thursday, September 01, 2005
How Lucky We All Are
I am back from vacationing in Virgin Gorda, British Virgin Islands, and getting back to normal life. Lots of laundry and doctor's appointments this week. We had a fantastic time and welcomed the opportunity to do nothing but relax at the pool and beach.
This week was a follow-up visit with the oncologist, a radiology visit, and a colonoscopy - everyone should do one. All is well. I feel great and ready to move on to the next phase of my healing process. Radiology begins next Tuesday for 33 treatments. My biggest problem is timing my visits between bus schedules and pre-school. I welcome these kind of challenges.
Doesn't it just kind of shrink your problems just seeing those poor people affected by the hurricane? I just can't help thinking about the women in New Orleans or Mississippi who is going through this same process now who also has to worry about her home, family, and when and if she can continue treatments and where she goes from here. I'm sure there are lots of people who are affected by this terrible hurricane who also have other trauma's to deal with in their lives. What about the woman who is just going through her diagnosis and now all her records have been washed away. Where do you go from here? How can we help, I don't know. I guess the best thing right now is to pray for these people and send money to the Red Cross or whatever charity can help. I think we all must help, however big or small.
From what I've seen in my little micro part of the world, you are all out there already, ready to help. I have seen so much out pouring of people wanting to help, and seeing me through my crisis, I just know that we will all pull together to help those affected by Katrina. Maybe you can't see what you can do, but I can. All of us pulling together, one by one, we all make a difference. With me, every phone call, every note, every silent prayer, every smile and how are you doing, every meal delivered to my door, every e-mail, and on and on, each little act of kindness helped me through this terrible time in my life. As a nation, if we all do whatever we can, we can help our fellow Americans through this terrible disaster. I have experienced it first hand! Thank you all!!!
This week was a follow-up visit with the oncologist, a radiology visit, and a colonoscopy - everyone should do one. All is well. I feel great and ready to move on to the next phase of my healing process. Radiology begins next Tuesday for 33 treatments. My biggest problem is timing my visits between bus schedules and pre-school. I welcome these kind of challenges.
Doesn't it just kind of shrink your problems just seeing those poor people affected by the hurricane? I just can't help thinking about the women in New Orleans or Mississippi who is going through this same process now who also has to worry about her home, family, and when and if she can continue treatments and where she goes from here. I'm sure there are lots of people who are affected by this terrible hurricane who also have other trauma's to deal with in their lives. What about the woman who is just going through her diagnosis and now all her records have been washed away. Where do you go from here? How can we help, I don't know. I guess the best thing right now is to pray for these people and send money to the Red Cross or whatever charity can help. I think we all must help, however big or small.
From what I've seen in my little micro part of the world, you are all out there already, ready to help. I have seen so much out pouring of people wanting to help, and seeing me through my crisis, I just know that we will all pull together to help those affected by Katrina. Maybe you can't see what you can do, but I can. All of us pulling together, one by one, we all make a difference. With me, every phone call, every note, every silent prayer, every smile and how are you doing, every meal delivered to my door, every e-mail, and on and on, each little act of kindness helped me through this terrible time in my life. As a nation, if we all do whatever we can, we can help our fellow Americans through this terrible disaster. I have experienced it first hand! Thank you all!!!
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