Monday, April 17, 2006

Happy Easter to everyone. We had a very busy day. Went to church at 8:30, then everyone came to our house for dinner. Had an Easter egg hunt in the yard. Today, I am exhausted. My sweet husband cleaned up the kitchen this morning so I'm going to take it easy today. Last Easter is just so vivid to me. How I felt, the uncertainty for the next year. When I went up to take communion, I glanced up at the chior loft, and saw Elizabeth doing bells. Looking stylish wearing her scarf, in the middle of her chemo. It seems every year there is one more person. It was a bit emotional for me. I'm just a baby.

But here I am a year later, cancer free!!! I got my test results back and they were all negative. I have a bone scan scheduled for Tuesday, but I think I will cancel it. I now know why my joints all ache. I went to Mt. Sinai to visit with a doctor there to discuss my Chrons disease. That's what put me in the hospital in January. I don't want to relive that. Anyway, come to find out, Chrons is simiar to Multiple Sclorosis in that is is an immune disease, and even asked if I had people in my family with MS or lupis. Come to find out, I'm not 100 years old, it affects your joints like arthritis. I also found out that my red, bloodshot eyes is also a sign of active disease. Who knew? Surgery may be in my future for this, and may be the best option. Very informative visit. More to come, I'm sure, as he evaluates my tests, films, etc.

I need a full time secretary to help me manage doctor's appointments. When will it end!!!! ARGH!!!!!!!!!

Friday, April 07, 2006

I made it through one year. Yesterday was one year since my surgery. It's kind of like my new birthday, only it's like the first step to the rest of your life. I stopped by the see Elizabeth and drop off some baked goods. She's doing great, looks great, and aside from being tired says she feels fine. I think chemo is a little like a lobster being dropped into a cold pot over a flame. You get sicker as you go, only you don't really feel it until you're really sick. Does that make sense? I remember feeling fine during chemo aside from having bad days, but once you have your last treatment you think, wow, I was really sick. It just sneaks up on you and the effect is cummulative.

I'm having Easter at my house this year, and planning Sophia's 6th birthday. Tomorrow is John's 40th!! He didn't want anything special. We are going to Las Vegas at the end of the month. I've been so busy. So much for taking it easy!