Wednesday, September 17, 2008

Community Cares Chili's Fundraiser



Here is me and Elizabeth at our first Community Cares fundraiser. We are planning another one Saturday, October 18, from 8am to 10am also at Chili's. It's a pancake breakfast and raffle. I'll be selling tickets $5 for kids, $8 for adults. All proceeds go directly to Community Cares and are tax deductible.

Community Cares is a non-profit I started last year that provides support to families with children whose primary caregiver is going through cancer treatments. We provide donated meals from restaurants, cleaning services, laundry services, and babysitting services. It is all provided to our clients free of charge, therefore, we rely on donations from the community.

We are always looking for volunteers to deliver meals, teenagers seeking community service for babysitting, as well as business sponsors. I really want to get a nice website up this year. I'll keep you posted. For now, check out our site at www.CommunityCares.org.

Me & My Girls

Wednesday, June 11, 2008

Thursday, June 05, 2008

Honoring My Grandma

I did an interview for Community Cares for the Support Connection Newsletter. You can download a copy if you click on the Support Connection link on this page. Than look for the Spring Newsletter. I am in the Survivors section. They did a nice job!

As many of you know, my grandmother passed away last week. I went to Nebraska for her funeral. She will be missed. My family is taking donations in her memory and donating it to Community Cares. I was very touched and honored.

I gave a eulogy to honor her memory. Here it is:

When I thought about saying a few words about my grandma, I started thinking about a million stories, memories, trips we've taken. How she's been there my whole life and been to everything no matter where I lived, or what it was for. It's difficult to boil it all down into a few words, so I'll just highlight some of my recollections.

My grandmother has been there for me my whole life, 43 years... but that's not even half her life. She had a whole life before I was born. I often thought of her growing up in Minnesota, going to the lake, spending time with her family. She went to Johnson High School and graduated in 1932 and she ran track. I know, she gave me her class ring because I graduated in 1982 and I also attempted to run track. She worked at Montgomery Wards, married my grandpa when she was 21, and had a little baby girl, my mother, for her 22 birthday. At their 50th wedding anniversary I found out that they eloped and got married. After they had my mom, they had two more children, which turned into 9 grandchildren, which turned into more than 14 great grand children. They were married for 60 years. She taught me something about commitment.

My grandma was sweet, funny, humble, solid gold, self confident, generous, honest and strong. She was one of those people who would give you the shirt off her back, yet was uncomfortable taking anything back. If I bought dinner she was always digging in her purse to pay for her share (just like my mom). She deserved diamonds and gold and riches, but was happy with what she had. She was a true giver, always giving of herself, never asking for anything return, and never expecting anything in return. She taught me something about generosity.

I never heard her yell, cuss, never drink more than one glass of wine, I never heard her gossip or talk bad about anyone. She taught me about self control.

One of my greatest memories in my life, not just of my grandma was when we went to Sweden, with my mom, Diane, and Grandma. Spending time with her in Sweden is one of those gifts in life that don't come along that often. Going from house to house, tracing our families history, hearing stories, visiting churches, seeing pictures of her family. We were welcomed like royalty in Sweden by everyone and I know that was because of the great respect and love for my grandma. Everyone loved and respected her. From every walk of life, everyone who met her. She taught me something about respect, giving it and receiving it.

She didn't always have it easy, and life was sometimes hard, but you never knew it. She walked on, head held high, no complaints, no mater how she felt or how hard times may have been. She taught me something about humility.

I remember as a child always getting together at my grandparent's house for dinner. We would go over to their house and play tag, watch home movies, play cards, play in the basement. When we were kids the yard and grandma's house seemed so much bigger and so much fun. First thing we'd do is open the drawer in the dining room and pull out some crayons and coloring books. She made the best oven fried chicken, mashed potatoes, and corn. She made the best chocolate pies, pecan pies, pumpkin pies. She made the best Christmas cookies, which she made every Christmas, even this past Christmas. She always made pies at Thanksgiving, cookies for Christmas. After church, we would stop by and she'd take out her homemade sweet rolls, always ready when someone dropped by. She taught me the comfort of home and tradition.

My grandma was there for everything from birthday's and dance recitals, to baptisms and weddings, from the birth of my children to my cancer treatments. And I know she was there for all of her children and grand children, and even her great grandchildren. We always felt like we were the most important, and loved. She taught me something about the importance of family.

Some of my earliest memories are going on trips with my grandparents to the lake or to Minnesota. We would always stop at the gas station and they would buy a sack of candy bars and we would pick which ever candy bar we wanted. I loved that. She told us stories and jokes in the car on the ride. She loved to do puzzles, crochet, and play the piano. Some hobbies I also share with her. As many of you know she liked to go to the boat and put a few dollars in the machines. That was her social life. She enjoyed it! Whenever we got together we always played cards and laughed so hard. That kind of laughter is so genuine and fun and soul cleansing. Some of the best laughs I had in my life were with my grandma. She taught me something about just having fun!

Each of these recollections sounds small and ordinary. My grandmother wasn't rich or famous. She didn't have a big career, or fancy house, or was adored by thousand of fans. But each story adds up to a wonderful extraordinary, special women who was truly great. She is someone to live up to, someone to emulate, someone to tell future generations about. The don't make them like her anymore, but we can remember in our own lives the lessons she taught us, and take them with us. She lives on in each one of us.

I don't know haw many of you listen to country music, but there's a song by Kenny Chesney called don't blink. I goes "take each breath God gives you for what it's worth... Don't Blink, just like that your 6 years old and your taking naps,and you wake up and your 25 hight school sweetheart becomes your wife, don't blink you just might miss your babies growing like mine did, turning into moms and dads, next thing you know your better half of 50 years is there in bed and your praying God takes you instead, trust me friend 100 years goes faster than you think, so don't blink, life goes faster than you think." the last words my grandmother said to me was "I love you", so I'll make them my last now, I love you grandma...We'll see you again someday...

Come To the Community Cares Fundraiser

There will be a Community Cares Fundraiser, June 23 at Chili's Somers by the Stop & Shop. 10 % of your total check will be donated to Community Cares. Just mention to your server that you are there for Community Cares. We will have flyers on hand to pass out to give to your server, but just mention it to your server so Community Cares gets the donation.

Check out the Community Cares web site (which will be soon revised) at www.CommunityCares.org.

More to come.....

Tuesday, March 04, 2008

It's Been 3 Years Since My Diagnosis - Still Strong

It's been a while since my last post. I sure hope there is someone out there. Three years ago in February, I was diagnosed with breast cancer. It was the ride of my life. I went through surgery, chemotherapy and radiation. It was the worst experience of my life and yet makes me stronger and gives me purpose each and every day.

Having been through all that and now looking back it is very painful. I think my way of going forward and not looking back is what I am doing with Community Cares, the non-profit I started and am now working almost full time to help moms going through cancer, or other major illness take care of their children by delivering meals, housecleaning, laundry, babysitting, transportation, etc. All donated by businesses in our community.

It is so painful for me to have been through all that and see other friends diagnosed within a few months of me still fighting, still getting treatments, and yet still optimistic, and still strong. Jessica and Cathy, you are my hero's, you are. Its very hard for me to look back, I can only look forward. With every mom that I help, I dedicate it to Jessica, Cathy, and all the mom's out there who are raising their families in the midst of this nightmare of cancer and still find the strength to encourage everyone else.

My pain today doesn't come from the fact that I went through this. It comes from the fact that people I care about are still in the trenches. I pray everyday for you and a cure to this disease. I'm not a doctor or a researcher, but I will do everything I can to help women diagnosed with this to live better lives. I am just a mom, but I can do what I can do to help.

Okay, thanks for listening. I get a little emotional this time of year. It's when my journey through this began 3 years ago. I've been done with treatments for 2 years now. I am stronger than ever and ready for great things!

Wednesday, January 02, 2008

Happy New Year!

May you have a very happy and healthy new year! We are very blessed this year as always to be healthy and very happy. This is the year I will get my non-profit off the ground. In case you don't know, it is called Community Cares. We help families where the primary caregiver is diagnosed with a major illness like cancer, or MS and we help out with laundry, house cleaning, meals, etc. Anything that will help families with small children deal with the day to day of maintaining a household while going through chemotherapy, or other debilitating health issue.

We work strictly on donations from the community. We depend on the generosity of local restaurants, laundries, and house cleaning businesses as well as donations from individuals and businesses.

When someone is diagnosed with cancer, you really don't know what to expect. When I went through chemo, I had lots of help from my family and friends. Unfortunately, there are people who are not as fortunate and may be away from family, or maybe don't want to be a bother, or even think they can do it on their own and don't want to ask for help. Whatever the situation, we are here to help. All our services are confidential and free of charge for our clients. Because our services are free of charge, we depend on donations to help out. I'll keep you posted on our progress. It seems like someone everyday is diagnosed with cancer and has children to raise. It's not easy, but that's where Community Cares help out!

Tuesday, May 01, 2007

MS Walk, May 20

May 20th is the Sayegh Law MS Walk in Carmel at the Carmel Firehouse. I hope you can make it to the event and participate. It is always a fun event even if you don't walk. The following weekend in Memorial Day Weekend, and I am organizing a community tag sale in my neighborhood that will raise money for the MS Walk. So far I have four neighbors participating and willing to donate a portion of their sales to the Walk, and others donating items for sale. The Tag Sale will be Friday and Saturday, Memorial Day weekend, May 25th and 26th from 9:00 am to 4:00pm. The sale is located off of Archer Road to Oak Pond Lane. Follow the signs around the neighborhood to each house hosting a tag sale. I'll look forward to your support with a great cause.

Tuesday, April 24, 2007

I'm Back...

Wow, I can't believe it's been 3 months since my last post. I guess that's good, no news is good news. As you can see from the pictures we went to Aruba after Easter and we had a great trip. We went with 4 families total. There were 21 people in our group. The kids had such a fun time with their cousins. We went jet skiing, snorkeling, we went on a banana boat, which is a banana shaped float that holds 10 people and is pulled behind a speed boat. We went on an 80 foot sailboat. It was all so much fun. We had a much needed break. Swimming everyday, beach, tropical drinks... I'm ready to go back!!

We came back to a real dose of reality. We came back just before a Nor' Easter brought about 8 inches of rain. Flooding everywhere, streets washed out, basements flooding, Thank goodness ours was dry.

Had a CT Scan a few days later. Those are always fun. It was a follow-up scan. The nurse has to set-up an IV to administer the contrast, and after 2 pokes of a needle and digging around in the vein, she had to get the doctor to stick me again. They can only use one of my arms since I had lymphnodes taken out of my other arm. My right arm has been stuck so many times! Anyway, my scan came out stable. No change, it's a good thing.

Spring is finally here and I am so ready for it! I can't wait to start planting. Hope you are all well. Enjoy everyday!





Tuesday, January 16, 2007

It's official, there is nothing significant in my brain! Yes! Let me explain... On my last visit to my oncologist, it was discovered on my blood work that my thyroid is low, and slightly anemic. I was sent away to visit another doctor to get more drugs to control my thyroid, and scheduled to go back to my oncologist for a follow-up blood test. At that follow-up visit, I casually mentioned I was feeling unbalanced and dizzy occasionally. I know, I know. I should keep my mouth shut. Anyway, Dr. Mills sent me for a brain MRI. Turns out, my brain shows no sign of malignancy, but a chronic sinus infection. They want me to see an ENT specialist now. Always something! I guess that's why I've felt cloudy and unbalanced. Thank God!

Wednesday, January 03, 2007

Monday, January 01, 2007

Happy New Year!

What a beautiful year ahead! Did anyone make any resolutions? I resolve to be healthy and strong the whole year long, and wish the same for you and your families. This past year has been a hard year for many. Last January I started with such high hopes after finishing chemo and radiation, only to end up in the hospital with an intestinal blockage. And now I am finishing with thyroid problems. Chemo and radiation wreak havoc on your body. I am hoping to put this all behind me and get healthier and stronger with each passing year.

We got back from Omaha last Thursday. We had a wonderful Christmas with my family. It went too fast. We were there for only one week.

Blessings to you for a Healthy and Happy New Year!!

Thursday, December 14, 2006

What's New!?

I have been out of the blogesphere for a while now. Anyone still out there? I have been busy, sick, sometimes depressed, sometimes happy - the usual. I've been so tired I feel like I can't get out of bed in the morning. I thought I was just sick. I went to visit my oncologist last week, and they always take blood. Turns out I have hypo thyroid which explains a lot. I'm also enemic. So I guess I have an excuse for being sick and tired all the time, I'm actually sick and tired. I went to visit another doctor, an internist, and they took more blood. Yes, I have a low thyroid. More drugs. Some of the symtoms of low thyroid of which I have all of - tired, vision changes, confusion, panic attacks, mood swings, joint pain, unable to form sentances or have complete thoughts.

I can't even collect my thoughts enough to write an intelligent sentenance. I appologize in advance. We decided on a name for our non-profit. It's called "Community Cares". The purpose is to help those affected by a major medical crisis in their lives, and still have families to take care of while they are getting better. Don't you know people like that and don't know what to do to help? That's where we come in. A neighbor or friend or family member will nominate someone in need. We will then access the needs of the family affected, and offer cooked meals, cleaning services as well as laundry services. When you are going through chemo, or major surgery, or have a debilitating illness, the last thing you want to think about is folding towels. Everyone wants to help, but don't know how. Depending on the situation of the person, their needs will be evaluated every 3 to 6 months, with the understanding that this is only temporary to help them rest and get better. My brother-in-law, Bill Sayegh is helping me get this thing started. What a great help!

I hope you all have a Merry Christmas! My husband got me a banjo for Christmas. What did you get? I told him once I've always wanted to learn how to play, and he goes out and get's me one. I love it! Let me know what you got this year. Also, if you have any good news, post it. I really need some good news.

Friday, October 27, 2006

It's hard to know what to say anymore. I'm now in the follow-up stages of this aweful disease. Mamo's, MRI's set for Nov. Had bonescan in Oct. Had CT scan just before that. I am so thankful that I made it through, and I am doing well. Now I want to help those continuing to fight. I may have mentioned this before, (chemo-brain, bear with me), I want to start a non-profit to help mom's in our community who are going through cancer treatments either by organizing meals, cleaning bathrooms, babysitting, etc. I have a friend who is also interested and the two of us will be brainstorming to get it off the ground.

I understand that there are all kinds of fundraisers out there to cure cancer, but I want to help the women here today who are in the trenches of this disease, managing everyday life. That's where friends and family come in, but take it from me, it is hard for someone going through this to ask for help, and sometimes, there is no one to ask, and people don't know what to do or when to step in. I am hoping to start an organization to facilitate help for women going through this. Women in particular since they are usually the primary caregivers to their families, take care of the children, household, dinners, driving, working, etc. The spouse must continue working to help pay hospital costs, to keep medical insurance, and must manage extra duties that his wife cannot during treatments. It adds to the stress of the situation. If I had an organization that could do their laundry once a week, provide a meal or two a week and clean their bathrooms during their treatments, find a babysitter to get the kids off the bus, just to be a blessing in the middle of the storm. You come to realize how much the little things mean when you go through this. You can't take time off from being a mom, even when you are going through cancer treatments.

Anyone have any ideas what to call this new non-profit? Mother's Helper? Mom's Blessings? Get creative and let me know what you think. I'm sure when we get this off the ground we will be doing a fundraiser. That's way in the future for now. I'll hit you up, I mean, I'll let you know when we will need your help! Meanwhile, thanks for all your help. You all inspired me to do this since you helped me through my sickness and back into health. Now I want to give back to the communtiy.

Wednesday, October 04, 2006

All is well with the bone scan. They just noted arthritis in the joints, so that accounts for the joint pain. I have a big laundry list of routine appointments coming up. Just follow-up as usual. My two daughters and I did the Support Connection Walk last Sunday in the pouring rain. It was very moving and uplifting. I am happy to be there again, however, I didn't see Glen Close. She is the celebrity spokesperson, and I saw her last year. The rain must have deterred her. We all had our reasons for being there, and I wasn't going to let soggy shoes get in the way. Last year I walked with peach fuzz on my head. This year I couldn't help notice other ladies doing the same. Every year there will be more. I found out others I know indirectly who were diagnosed recently.

If you don't hear from me I'm either at a PTO meeting, council meeting, Girl Scout Meeting, teaching Sunday School, planning a women's group meeting, planning a Sunday morning brunch for church, going to a long list of doctor's appointments, doing laundry, dishes, homework, driving kids around, blah, blah, blah! I can't fit one more thing into my day. Help...

Thursday, September 14, 2006

Oncologist Visit

It's been a while since my last post. Busy with school and scheduling, church and activities. Now the doctor's appointments are starting again. I had a visit with my oncologist Tuesday. The usual visit, exam, draw blood. At the end of our visit I half-heartedly asked if the Tamoxifen I am taking causes joint aches because I feel like a 90 year old women. She got a "look" on her face and asked to nurse to take more blood. Then she wrote a prescription for a bone scan. She mentioned it could be bone disease or arthritis or possibly my chron's disease. So off I go for another bone scan. If you have never done one (and why would you), I start off with an injection of radioactive materials, then wait for 3 hours for my body to light up like a Christmas tree. Then I lie on a metal table for 3 hours while the machine scans all my bones. I just have to lay still for 3 hours on a table. Can't wait. I think oncologist's just look for ways to torture their patients.

While in the waiting room I came across "Survivor Magazine" with Lance Armstrong on the cover. It talked about being tired all the time, that it is a long-term effect of chemo. I was wondering when I was going to get my energy back. You are kind of embarassed when you are so tired and blame it on chemo. I finished my chemo a year ago. I should be done with all the side-effects by now. Well, I don't feel so foolish now. Another relevation, the treatment of cancer is not done when the chemo and radiation is over. I think then you need to work on your spirit - something I need to address in the coming months.

I am up for my yearly mamo/MRI also. I will get the combo every year since the mamo didn't pick-up the tumor the first time. As you may recall, I found the tumor myself four months after a mamogram. REMINDER: Do your monthly self breast exams!! If I hadn't found it myself, I may not have noticed until my next mamogram in another 9 months. Who knows what may have happened.

This October 1st is the annual Support Connection Walk at FDR Park. The Support Connection helps women who have been diagnosed with breast or ovarian cancer. It's a fantastic event. I encourage everyone to attend or at least donate. The money goes right into programs that directly benefit our community and women, mothers, sisters, grandmothers, aunts and friends. I am one person who was helped by the Support Connection. Go to their web site and check it out. I have included a link on the right side of this blog. Attend the walk, you won't be sorry.

Thursday, August 17, 2006

What I did on Summer Vacation

Having a great time in Omaha. We have done so much. Last week I saw Brad Paisley in concert-FANTASTIC! Went to the county fair and saw a tractor pull, went to Kansas City and went to a water park and Worlds of Fun, took my mom to Las Vegas, went to an Indian Pow Wow last weekend with my sister and her kids, went to a museum, the zoo, spent time swimming at my brother's house, just hanging out with my mom and sister and brothers and grandma, saw my aunt Julie and her kids. And of course, shopping. I love shopping when I come here, because there is always a new shopping mall. Omaha is getting big! I'm having a ball. There's so much more I want to do, but there is never enough time. I'll be leaving on Tuesday back to New York, God willing! I'll post some pics if I can figure out how to do it again!

Today is my mom's B-Day so we just took her out to lunch, she doesn't want anyone to know - too late! My Grandmother's B-day is Saturday and we will have a party for her at my brother, Mark's house. We have some family coming from Minnesota, so it will be a celebration. One week and I'll be back to normal, missing everyone again. It will be nice to sleep in my own bed.

Monday, July 17, 2006

Anyone out there? I'm here in Omaha for a few weeks. It has been quite hot. Enjoying my children, mom, and family. John just left today. He was here for a week. I will be back August 22. I'll be expecting a coming home party - ha ha hee! Nothing new to report on the health front - Thank the good Lord! I just pray that everything continues to be uneventful.

I continue to pray for others who are living with cancer, there are so many. Keep them and their family's in your prayers as well. See you in August!

Friday, June 16, 2006

Well, I visited with my surgeon yesterday. She examined me and said that the inflamation was from radiation. That's what the scan said, and my doctor said it's not unusual for inflamation to show up a few months after radiation. She said it may or may not get better, but there is nothing to worry about. I'm very happy about that.

Happy Father's day to everyone! Keep Janette Yetter in your prayers. She ended up having surgery today to remove a growth on an overy. It is thankfully benign. She said she will be in the hospital until Sunday.

I'm going to keep this short and sweet, I'm in a lot of pain. I wish I knew a good chiropractor... I have terrible neck pain. John is taking good care of me. I just need to rest and keep getting adjusted.